UCL HUNTINGTON’S DISEASE RESEARCH

INFORMATION FOR SCIENTISTS, CLINICIANS, PATIENTS, RELATIVES AND CARERS

UCL HUNTINGTON’S DISEASE RESEARCH

UK PREMIERE OF HUNTINGTON’S DISEASE DOCUMENTARY

UPDATE! On 20th June at 6:45 there will be another screening of Do You Really Want to Know on the opening night of UCL’s Open City Docs Festival. For information and to book tickets, click here.

Dr Ed Wild hanging film posters around Queen Square

On Friday 1st February 2013, UCL Institute of Neurology hosted the UK Premiere of the documentary feature film ‘Do You Really Want to Know?’, from Academy Award® winning director John Zaritsky.

Clinical Lecturer Dr Ed Wild organised the premiere, which completely sold out and raised almost £2000 on behalf of the Huntington’s Disease Association. The audience was very
diverse with clinicians, scientists, students, HD patients, family members and the public. It was wonderful to see so many people raising funds and awareness for Huntington’s disease.

The documentary gives a moving account of three families living with the risk of inheriting Huntington’s disease, (a genetically inherited degenerative brain disease), and the agonising decisions
around choosing whether to undergo the genetic test that will tell them whether they will develop the condition. No treatments are available to slow the disease down or cure it, though efforts to find such treatments have made great progress thanks to researchers and volunteers from HD families.

‘Do You Really Want to Know?’ won two Golden Sheaf Awards: Best Documentary (Science/Medicine/Technology) and Best Director (Non-Fiction) at the 2012 Yorkton Film Festival; a Chris Award for Best Science & Technology Documentary at the 2012 Columbus International Film & Video Festival; and Best Documentary the 2012 Okanagan International Film Festival.

We are very grateful to everyone who attended (and those who could not).  Following the success of this UK premiere, we’re optimistic that other screenings will follow. Visit http://doyoureallywanttoknowfilm.com where you can register your interest in the film and find out about planned screenings.

The premiere completely sold out and it was great to see so many people raising funds and awareness for Huntington's Disease

 

Dr Wild introducing the film to the audience

Enjoying a glass of "champagne style drink" after the showing and discussing the movie.

Updated February 5, 2013